In an earlier blog, we spoke about Lisa Thibeault’s presentation at the WFH (World Federation of Hemophilia) Congress held recently in Glasgow, Scotland. Julie Grabell, Clinical Research Assistant to Dr. Paula James, also gave a poster presentation about the use of Let’s Talk Period in Dr. James’ hematology clinic entitled Does the use of an online screening tool affect referral outcomes? Preliminary results of the Let’s Talk Period project. A summary of this project is below.
Classification of bleeding symptoms as normal or abnormal is a challenge for both patients and physicians but is critical in the diagnosis of an inherited bleeding disorder. The online Self-Administered Bleeding Assessment Tool (Self-BAT) is freely accessible on the Let’s Talk Period website and assesses past and present bleeding symptoms and generates a quantitative Bleeding Score (BS).
The goal of this study was to examine the characteristics of new patients seen in a tertiary care Hematology clinic in Kingston, Ontario, Canada, to determine if referral due to an abnormal Self-BAT BS (> 6 for women, >4 for men) was more likely to lead to a diagnosis of an inherited bleeding disorder and require more clinical intervention than those referred without the prior use of the Self-BAT as a screening tool.
Of 61 patients (57 female) seen in Dr. James’ clinic for suspicion of an inherited bleeding disorder in a 12 month period, 9 were referred by their primary care provider due to a positive Self-BAT BS. 52 were referred for other reasons: bleeding or bruising symptoms, abnormal labs or family history. Clinical assessment at the initial visit showed that individuals referred for a + Self-BAT BS had more bleeding issues than those referred for other reasons and required intervention due to bleeding issues more frequently (i.e. iron supplementation, referral to Gynecology, ENT) and were more likely to be diagnosed with an inherited bleeding disorder.
Preliminary results of this ongoing study suggest that the Self-BAT may be a useful tool for patients and physicians in identifying those in need of referrals to hematology clinics for assessment and management.
Thank you for letting people know about our cause, Julie!
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